Heart update

So Finley had her appointment at Children's on Friday and the news wasn't fabulous. She has two congenital heart defects. The first one is called Atrial Septal Defect and the second is Pulmonary Stenosis. She has a hole in the wall of the two upper chambers and a narrowing of the Pulmonary valve. The bottom line is that she will have to have heart surgery probably before she goes to Kindergarten. While we are not thrilled with the news, we know that God is in control.

She has gained a little bit of weight again and was up to 7lbs 4oz. One of the side effects of her condition is that she will be slow at gaining weight which is nice to know as she has been struggling in that area. I have been pumping and then feeding to try to ensure adequate gain, so I am waiting to hear back from our doctor about stopping that and being able to relax a little about it.
Her Reflux seems to be better on the meds which is a blessing!

We are doing ok. Trying to look on the bright side about it all! :)

Here are a few pictures from the last few weeks. Lots of sleeping going on around here!

update

yikes. Does anyone check this anymore? Wondering if I should keep updating it or move over to our other blog. The address for that one changed. It is now http://thepembertonpost.blogspot.com. I went to change it with the assumption that it would still forward from our other name, but no luck.

So Finley update.. She is doing pretty good. She is up to 6lbs 14ozs as of our last appointment on Wed. She is having a hard time with sleeping as she has Reflux. She projectile spits after almost every feeding. He put her on Prevacid last visit and it takes about a week to see results. I am hoping this works! She is just miserable. Really gassy and in pain. She hasn't been gaining as well as our doctor would like so I am back to pumping and bottle feeding.

The other big thing with her right now is our doctor's concern with her heart. We are heading down to Children's Hospital in Seattle on Friday afternoon to see a pediatric cardioligist as Finley has a heart murmur. They are pretty common in kids but the reason he is concerned about it is because it is getting louder instead of quieter. There are a munber of things that it could be.. so we are waiting to see what that is all about.

I will be sure to post about that after the appointment.
Keep us in your prayers!

I am flying solo for a few days as Joel is gone at a staff retreat.He took the camera with him and I forgot to get the most recent pictures off it. I will have to post some more later.